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Sufferers fight for recognition of little-known disease that could affect up to 1.2 million Aussie w

For decades Melbourne woman Nola Young wondered why her legs were so much bigger than the rest of her body. She was told by many, including doctors, that she was just overweight, and to lose weight. “I had asked so many questions over the years. I’d dieted, had weight loss surgery and I’d done so many exercise programs, played that much sport but I still looked like I was overweight,” Ms Young told nine.com.au. Little did Ms Young know that she was suffering from a common disease that could affect as many as 1.2 million, or 11 percent, of Australian women.

“In order for a new medical service to be funded through the MBS, an assessment is required by the Medical Services Advisory Committee (MSAC),”the spokesperson said. “MSAC provides advice to the government on whether a new medical service (for example, specific surgical treatment of lipoedema) should be publicly funded based on an assessment of its comparative safety, clinical effectiveness, and cost-effectiveness, using the best available evidence.”

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